Coffelt, A., & Djandji, A. (2022). Mutant metaphors:Frankensteinin the era of COVID-19. Medical Humanities, 49(2), 272–277. https://doi.org/10.1136/medhum-2022-012405

Lee, S. S.-J., Caruncho, M., Chung, W. K., Johnston, J., Tabb, K., & Appelbaum, P. S. (2023). Individualized interventions for rare genetic conditions and the research-treatment spectrum: Stakeholder perspectives. Genetics in Medicine, 25(6), 100832. https://doi.org/10.1016/j.gim.2023.100832

Kapur, S. L., & Sabatello, M. (2023). People with disability and privacy in precision medicine research: what’s at stake? Trends in Genetics, 39(5), 335–337. https://doi.org/10.1016/j.tig.2023.01.001

Rasouly, H. M., Balderes, O., Marasa, M., Fernandez, H., Lipton, M., Lin, F., Gharavi, A. G., & Sabatello, M. (2023). The effect of genetic education on the referral of patients to genetic evaluation: Findings from a national survey of nephrologists. Genetics in Medicine, 25(5), 100814. https://doi.org/10.1016/j.gim.2023.100814

Linder, J. E., Allworth, A., Bland, H. T., Caraballo, P. J., Chisholm, R. L., Clayton, E. W., Crosslin, D. R., Dikilitas, O., DiVietro, A., Esplin, E. D., Forman, S., Freimuth, R. R., Gordon, A. S., Green, R., Harden, M. V., Holm, I. A., Jarvik, G. P., Karlson, E. W., Labrecque, S., … Peterson, J. F. (2023). Returning integrated genomic risk and clinical recommendations: The eMERGE study. Genetics in Medicine, 25(4), 100006. https://doi.org/10.1016/j.gim.2023.100006

Reardon, J., Lee, S. S.-J., Goering, S., Fullerton, S. M., Cho, M. K., Panofsky, A., & Hammonds, E. M. (2023). Trustworthiness matters: Building equitable and ethical science. Cell, 186(5), 894–898. https://doi.org/10.1016/j.cell.2023.01.008

Bergen, S., Murimi, D., Gruer, C., Munene, G., Nyachieo, A., Owiti, M., & Sommer, M. (2023). Living with Endometriosis: A Narrative Analysis of the Experiences of Kenyan Women. International Journal of Environmental Research and Public Health, 20(5), 4125. https://doi.org/10.3390/ijerph20054125

Moore, C. B., Dolan, D. D., Yarmolinsky, R., Cho, M. K., & Soo-Jin-Lee, S. (2023). The ELSI Virtual Forum, 30 Years of the Genome: Integrating and Applying ELSI Research. Journal of Law, Medicine & Ethics, 51(3), 661–671. https://doi.org/10.1017/jme.2023.109

Amesty, S., Perez-Figueroa, R., Stonbraker, S., Halpern, M., Donastorg, Y., Perez-Mencia, M., Lantigua, F., Soriano, L., Baez-Caraballo, P., Gilbert, J., Buccini, F., Sharp, J., Hernandez, B., Gelfond, J., Cardwell, E., Nicholas, C., Egan, K. A., Gomes, A., Van Dyke, E., … Taylor, B. S. (2023). High burden of sexually transmitted infections among under-resourced populations in the Dominican Republic. Therapeutic Advances in Infectious Disease, 10. https://doi.org/10.1177/20499361231193561

Ransing, R., Vadivel, R., Halabi, S. E., Jatchavala, C., Shalbafan, M., Noël, C., Noor, I. M., Yee, A., Gürcan, A., & Ramalho, R. (2021). Language as Multi-Level Barrier in Health Research and the Way Forward. Indian Journal of Psychological Medicine, 45(1), 65–68. https://doi.org/10.1177/02537176211052071

Sabatello, M., Martschenko, D. O., Cho, M. K., & Brothers, K. B. (2022). Data sharing and community-engaged research. Science, 378(6616), 141–143. https://doi.org/10.1126/science.abq6851

McDonald, K. E., Schwartz, A. E., & Sabatello, M. (2022). Eligibility criteria in NIH-funded clinical trials: Can adults with intellectual disability get in? Disability and Health Journal, 15(4), 101368. https://doi.org/10.1016/j.dhjo.2022.101368

Lencz, T., Sabatello, M., Docherty, A., Peterson, R. E., Soda, T., Austin, J., Bierut, L., Crepaz-Keay, D., Curtis, D., Degenhardt, F., Huckins, L., Lazaro-Munoz, G., Mattheisen, M., Meiser, B., Peay, H., Rietschel, M., Walss-Bass, C., & Davis, L. K. (2022). Concerns about the use of polygenic embryo screening for psychiatric and cognitive traits. The Lancet Psychiatry, 9(10), 838–844. https://doi.org/10.1016/s2215-0366(22)00157-2

Lemke, A. A., Esplin, E. D., Goldenberg, A. J., Gonzaga-Jauregui, C., Hanchard, N. A., Harris-Wai, J., Ideozu, J. E., Isasi, R., Landstrom, A. P., Prince, A. E. R., Turbitt, E., Sabatello, M., Schrier Vergano, S. A., Taylor, M. R. G., Yu, J.-H., Brothers, K. B., & Garrison, N. A. (2022). Addressing underrepresentation in genomics research through community engagement. The American Journal of Human Genetics, 109(9), 1563–1571. https://doi.org/10.1016/j.ajhg.2022.08.005

Varman, P. M., Mosley, M. P., & Christ, B. (2022). A model for abolitionist narrative medicine pedagogy. Medical Humanities, 48(3), e10–e10. https://doi.org/10.1136/medhum-2021-012153

Dolan, D. D., Lee, S. S.-J., & Cho, M. K. (2022). Three decades of ethical, legal, and social implications research: Looking back to chart a path forward. Cell Genomics, 2(7), 100150. https://doi.org/10.1016/j.xgen.2022.100150

Shim, J. K., Bentz, M., Vasquez, E., Jeske, M., Saperstein, A., Fullerton, S. M., Foti, N., McMahon, C., & Lee, S. S.-J. (2022). Strategies of inclusion: The tradeoffs of pursuing “baked in” diversity through place-based recruitment. Social Science & Medicine, 306, 115132. https://doi.org/10.1016/j.socscimed.2022.115132

Lee, S. S.-J., Appelbaum, P. S., & Chung, W. K. (2022). Challenges and potential solutions to health disparities in genomic medicine. Cell, 185(12), 2007–2010. https://doi.org/10.1016/j.cell.2022.05.010

Bear Don’t Walk, O. J., Reyes Nieva, H., Lee, S. S.-J., & Elhadad, N. (2022). A scoping review of ethics considerations in clinical natural language processing. JAMIA Open, 5(2). https://doi.org/10.1093/jamiaopen/ooac039

Waldrop, G., Safavynia, S. A., Barra, M. E., Agarwal, S., Berlin, D. A., Boehme, A. K., Brodie, D., Choi, J. M., Doyle, K., Fins, J. J., Ganglberger, W., Hoffman, K., Mittel, A. M., Roh, D., Mukerji, S. S., Der Nigoghossian, C., Park, S., Schenck, E. J., Salazar‐Schicchi, J., … Claassen, J. (2022). Prolonged Unconsciousness is Common in COVID‐19 and Associated with Hypoxemia. Annals of Neurology, 91(6), 740–755. Portico. https://doi.org/10.1002/ana.26342

Iwai, Y., Holdren, S., Rosen, L. T., & Hu, N. Y. (2021). Narrative trajectories of disaster response: ethical preparedness from Katrina to COVID-19. Medical Humanities, 48(2), e8–e8. https://doi.org/10.1136/medhum-2021-012194

Walker, A. (2022). Diversity, Profit, Control: An Empirical Study of Industry Employees’ Views on Ethics in Private Sector Genomics. AJOB Empirical Bioethics, 13(3), 166–178. https://doi.org/10.1080/23294515.2022.2063993

Guerrini, C. J., Robinson, J. O., Bloss, C. C., Bash Brooks, W., Fullerton, S. M., Kirkpatrick, B., Lee, S. S.-J., Majumder, M., Pereira, S., Schuman, O., & McGuire, A. L. (2022). Family secrets: Experiences and outcomes of participating in direct-to-consumer genetic relative-finder services. The American Journal of Human Genetics, 109(3), 486–497. https://doi.org/10.1016/j.ajhg.2022.01.013

Garofalo, D. C., Rosenblum, H. A., Zhang, Y., Chen, Y., Appelbaum, P. S., & Sabatello, M. (2022). Increasing inclusivity in precision medicine research: Views of deaf and hard of hearing individuals. Genetics in Medicine, 24(3), 712–721. https://doi.org/10.1016/j.gim.2021.11.015

Jeske, M., Vasquez, E., Fullerton, S. M., Saperstein, A., Bentz, M., Foti, N., Shim, J. K., & Lee, S. S.-J. (2022). Beyond inclusion: Enacting team equity in precision medicine research. PLOS ONE, 17(2), e0263750. https://doi.org/10.1371/journal.pone.0263750

Rodman, G. K., & DasGupta, S. (2022). Beyond Trans competency: imagining a Trans liberatory future. The Lancet, 399(10324), 514–515. https://doi.org/10.1016/s0140-6736(22)00198-2

Martucci, J., Prado, Y., Rope, A. F., Weinmann, S., White, L., Zepp, J., Henrikson, N. B., Feigelson, H. S., Hunter, J. E., & Lee, S. S.-J. (2022). An Examination of the Ethical and Legal Limits in Implementing “Traceback Testing” for Deceased Patients. Journal of Law, Medicine & Ethics, 50(4), 818–832. https://doi.org/10.1017/jme.2023.23

Charon, R. (2021). Knowing, seeing, and telling in medicine. The Lancet, 398(10316), 2068–2070. https://doi.org/10.1016/s0140-6736(21)02656-8

Kauffman, T. L., Prado, Y. K., Reyes, A. A., Zepp, J. M., Sawyer, J., White, L. L., Martucci, J., Salas, S. B., Vertrees, S., Rope, A. F., Weinmann, S., Henrikson, N. B., Lee, S. S.-J., Feigelson, H. S., & Hunter, J. E. (2021). Feasibility of a Traceback Approach for Using Pathology Specimens to Facilitate Genetic Testing in the Genetic Risk Analysis in Ovarian Cancer (GRACE) Study Protocol. Journal of Personalized Medicine, 11(11), 1194. https://doi.org/10.3390/jpm11111194

Sabatello, M., Martin, B., Corbeil, T., Lee, S., Link, B. G., & Appelbaum, P. S. (2021). Nature vs. Nurture in Precision Education: Insights of Parents and the Public. AJOB Empirical Bioethics, 13(2), 79–88. https://doi.org/10.1080/23294515.2021.1983666

Fischkoff, D., Prager, K., Dastidar, J., Dugdale, L., Neuberg, G., Nemeth, S., & Fischkoff, K. (2021). Ethical Framework to Guide Decisions of Treatment Over Objection. Journal of the American College of Surgeons, 233(4), 508–516. https://doi.org/10.1016/j.jamcollsurg.2021.07.003

Lee, S. S.-J. (2021). The Ethics of Consent in a Shifting Genomic Ecosystem. Annual Review of Biomedical Data Science, 4(1), 145–164. https://doi.org/10.1146/annurev-biodatasci-030221-125715

Vaimberg, E., Demers, L., Ford, E., Sabatello, M., Stevens, B., & Dasgupta, S. (2021). Project Inclusive Genetics: Exploring the impact of patient-centered counseling training on physical disability bias in the prenatal setting. PLOS ONE, 16(8), e0255722. https://doi.org/10.1371/journal.pone.0255722

Gal, D. B., Deuitch, N., Lee, S. S. J., Simon, R. T., & Char, D. S. (2021). Parental Attitudes Toward Clinical Genomic Sequencing in Children With Critical Cardiac Disease. Pediatric Critical Care Medicine, 22(8), e419–e426. https://doi.org/10.1097/pcc.0000000000002669

Sabatello, M., Chao, A., Insel, B. J., Corbeil, T., Link, B. G., & Appelbaum, P. S. (2021). Psychiatric genetic essentialism and stigma in child custody proceedings: public views. Journal of Law and the Biosciences, 8(2). https://doi.org/10.1093/jlb/lsab026

Ahimaz, P., Sabatello, M., Qian, M., Wang, A., Miller, E. M., Parrott, A., Lal, A. K., Chatfield, K. C., Rossano, J. W., Ware, S. M., Parent, J. J., Kantor, P., Yue, L., Wynn, J., Lee, T. M., Addonizio, L. J., Appelbaum, P. S., & Chung, W. K. (2021). Impact of Genetic Testing for Cardiomyopathy on Emotional Well-Being and Family Dynamics: A Study of Parents and Adolescents. Circulation: Genomic and Precision Medicine, 14(4). https://doi.org/10.1161/circgen.120.003189

Cunningham, H., Taylor, D. S., Desai, U. A., Ender, K. L., Glickstein, J., Krishnan, U. S., Richards, B. F., Charon, R., & Balmer, D. F. (2020). Reading the Self: Medical Students’ Experience of Reflecting on Their Writing Over Time. Academic Medicine, 96(8), 1168–1174. https://doi.org/10.1097/acm.0000000000003814