Individualized interventions for rare genetic conditions and the research-treatment spectrum: Stakeholder perspectives

Lee, S. S.-J., Caruncho, M., Chung, W. K., Johnston, J., Tabb, K., & Appelbaum, P. S. (2023). Individualized interventions for rare genetic conditions and the research-treatment spectrum: Stakeholder perspectives. Genetics in Medicine, 25(6), 100832. https://doi.org/10.1016/j.gim.2023.100832
Authors:
Sandra Soo-Jin Lee
Mikaella Caruncho
Wendy K Chung
Josephine Johnston
Kathryn Tabb
Paul S Appelbaum
Affiliated Authors:
Sandra Soo-Jin Lee
Mikaella Caruncho
Wendy K Chung
Paul S Appelbaum
Columbia Affiliation:
Subjects:
Parents (MeSH)
Rare Diseases (MeSH)
Author Keywords:
ethics
gene therapy
pediatrics
rare genetic disease
regulatory governance
elink
Publication Type:
Article
Unique ID:
10.1016/j.gim.2023.100832
PMID:
36964709
DOI:
10.1016/j.gim.2023.100832
Journal:
Genetics in Medicine
Publication Date:
Data Source:
PubMed
Source Link:
View PubMed Record
View Scopus Record

Record Created: