Sadeghi, H., Kay, D. M., Langfelder-Schwind, E., DeCelie-Germana, J. K., Berdella, M., Soultan, Z. N., Goetz, D. M., Caggana, M., Fortner, C. N., Giusti, R., Kaslovsky, R., Stevens, C., Tavakoli, N., Voter, K., Welter, J. J., & Kier, C. (2024). Characterization of 223 infants with CFTR-related metabolic syndrome/Cystic fibrosis screen positive, inconclusive diagnosis (CRMS/CFSPID) identified during the first three years of newborn screening via IRT-DNA-SEQ in New York State. Journal of Cystic Fibrosis. https://doi.org/10.1016/j.jcf.2024.10.015

Brown, R. F., Close, C. T., Mailes, M. G., Gonzalez, L. J., Goetz, D. M., Filigno, S. S., Preslar, R., Tran, Q. T., Hempstead, S. E., Lomas, P., Brown, A. W., & Flume, P. A. (2024). Cystic fibrosis foundation position paper: Redefining the cystic fibrosis care team. Journal of Cystic Fibrosis, 23(6), 1045–1054. https://doi.org/10.1016/j.jcf.2024.09.011

Quittell, L. M., Simon, R. H., & Morgan, W. (2024). A model for oversight of rare disease studies: The 25-year experience of the cystic fibrosis foundation data safety monitoring board. Journal of Cystic Fibrosis. https://doi.org/10.1016/j.jcf.2024.05.001

Shah, K. S., Saiman, L., LiPuma, J. J., Kosorok, M. R., & Muhlebach, M. S. (2024). Association of Pseudomonas aeruginosa incident infections with adherence to cystic fibrosis foundation care guidelines. Journal of Cystic Fibrosis, 23(2), 300–305. https://doi.org/10.1016/j.jcf.2023.10.015

Goetz, D., Langfelder-Schwind, E., Kay, D., Sadeghi, H., DeCelie-Germana, J., Berdella, M., Soultan, Z., & Kier, C. (2023). 339 Diagnostic dilemmas in cystic fibrosis screen–positive infants with F191V and low sweat chloride. Journal of Cystic Fibrosis, 22, S169. https://doi.org/10.1016/s1569-1993(23)01266-3

Collins, M., Urban, M., Suleiman, M., Lapin, C., & Hopfer, S. (2023). 340 Decreasing time to definitive diagnosis in cystic fibrosis newborn screening. Journal of Cystic Fibrosis, 22, S169–S171. https://doi.org/10.1016/s1569-1993(23)01267-5

South, K., George, M., Sadeghi, H., & Smaldone, A. (2023). 414 National patterns of CF RISE uptake and engagement: a multidimensional approach to increase transition program utilization. Journal of Cystic Fibrosis, 22, S215. https://doi.org/10.1016/s1569-1993(23)01340-1

South, K., George, M., Sadeghi, H., & Smaldone, A. (2023). 595 Lost in transition? Predictors of health care transition outcomes in cystic fibrosis. Journal of Cystic Fibrosis, 22, S316–S317. https://doi.org/10.1016/s1569-1993(23)01517-5

Juliano, A., Sewell, W., Raissi, G., Encarnacion, J., Corcoran, B., & Sadeghi, H. (2023). 663 Identifying and assisting with food insecurity in children with cystic fibrosis. Journal of Cystic Fibrosis, 22, S363. https://doi.org/10.1016/s1569-1993(23)01585-0

Domaradzki, L., Tupayachi, G., Kelly, S., Barletta, P., Whitaker, I., Rodriguez, O., & Birdwell, S. (2023). 664 Sexual and reproductive health knowledge in cystic fibrosis patients: an evaluation and an intervention. Journal of Cystic Fibrosis, 22, S363. https://doi.org/10.1016/s1569-1993(23)01586-2

Sender, A., McCuin, T., Prior, C., Antell, M., Ludlow, M., Brady, C., Bridget, H., Weintraub, Z., & Teneback, C. (2023). 665 An early lung transplant education intervention with a focus on socialemotional readiness. Journal of Cystic Fibrosis, 22, S363–S364. https://doi.org/10.1016/s1569-1993(23)01587-4

Shah, M., Sadeghi, H., & Raissi, G. (2023). 706 Effect of highly effective modulator therapy on lipid profile of individuals with cystic fibrosis. Journal of Cystic Fibrosis, 22, S390. https://doi.org/10.1016/s1569-1993(23)01628-4

Leonard, A., Bailey, J., Bruce, A., Jia, S., Stein, A., Fulton, J., Helmick, M., Litvin, M., Patel, A., Powers, K. E., Reid, E., Sankararaman, S., Clemm, C., Reno, K., Hempstead, S. E., & DiMango, E. (2023). Nutritional considerations for a new era: A CF foundation position paper. Journal of Cystic Fibrosis, 22(5), 788–795. https://doi.org/10.1016/j.jcf.2023.05.010

Baldwin-Hunter, B. L., Rozenberg, F. D., Annavajhala, M. K., Park, H., DiMango, E. A., Keating, C. L., Uhlemann, A.-C., & Abrams, J. A. (2023). The gut microbiome, short chain fatty acids, and related metabolites in cystic fibrosis patients with and without colonic adenomas. Journal of Cystic Fibrosis, 22(4), 738–744. https://doi.org/10.1016/j.jcf.2023.01.013

Kass, A. P., Kazmerski, T. M., Bern, E., Sabharwal, S., Leonard, J., Harrison, M., Barnico, K., Richmond, T., & Sawicki, G. S. (2023). Clinician perspectives on assessing for disordered eating and body image disturbance in adolescents and young adults with cystic fibrosis. Journal of Cystic Fibrosis, 22(3), 431–435. https://doi.org/10.1016/j.jcf.2022.11.006

Pinezich, M. R., Tamargo, M. A., Fleischer, S., Reimer, J. A., Hudock, M. R., Hozain, A. E., Kaslow, S. R., Tipograf, Y., Soni, R. K., Gavaudan, O. P., Guenthart, B. A., Marboe, C. C., Bacchetta, M., O’Neill, J. D., Dorrello, N. V., & Vunjak-Novakovic, G. (2022). Pathological remodeling of distal lung matrix in end-stage cystic fibrosis patients. Journal of Cystic Fibrosis, 21(6), 1027–1035. https://doi.org/10.1016/j.jcf.2022.04.016

Stoudemire, W., Jiang, X., Zhou, J. J., Kosorok, M. R., Saiman, L., & Muhlebach, M. S. (2022). Predicting risk-adjusted incidence rates of methicillin-resistant Staphylococcus Aureus and Pseudomonas Aeruginosa in cystic fibrosis programs in the United States. Journal of Cystic Fibrosis, 21(6), 1013–1019. https://doi.org/10.1016/j.jcf.2022.08.002

Corcoran, B., Friedman, L., Raissi, G., Kowal, R., Sewell, W., Piane, V., Encarnacion, J., Maiberger, A., & Sadeghi, H. (2022). 103 Patients and family partners can become leaders on their quality improvement teams. Journal of Cystic Fibrosis, 21, S62. https://doi.org/10.1016/s1569-1993(22)00794-9

McCarthy, A., Smith, P., & Poch, K. (2022). 104 Provider involvement in research conversations with patients: Quality improvement. Journal of Cystic Fibrosis, 21, S62. https://doi.org/10.1016/s1569-1993(22)00795-0

Raraigh, K., Sheridan, M., Aksit, M., Pagel, K., Hetrick, K., Shultz-Lutwyche, H., Myers, B., Buckingham, K., Pace, R., Ling, H., Pugh, E., Knowles, M., Bamshad, M., Blackman, S., & Cutting, G. (2022). 152 My patient has an unresolved CFTR genotype … what next? Journal of Cystic Fibrosis, 21, S88–S89. https://doi.org/10.1016/s1569-1993(22)00843-8

Ycaza, M., Keating, C., DiMango, E., Lopez, J., Saroya, T., & McNeill, T. (2022). 52 Participation in interventional drug trials of minority populations at an urban adult cystic fibrosis center. Journal of Cystic Fibrosis, 21, S32. https://doi.org/10.1016/s1569-1993(22)00743-3

Naehrig, S., Breuling, M., Mertsch, P., & Behr, J. (2022). 53 Pregnancies in women with cystic fibrosis with or without intake of elexacaftor/tezacaftor/ivacaftor. Journal of Cystic Fibrosis, 21, S32–S33. https://doi.org/10.1016/s1569-1993(22)00744-5

Beswick, D., Overdevest, J., Zemke, A., Khatiwada, A., Gudis, D., Miller, J., Kimple, A., Smith, P., DiMango, E., Goralski, J., Keating, C., Stapleton, A., Balkissoon, C., & Taylor-Cousar, J. (2022). 574 Determining the minimal clinically important difference for the 22-question SinoNasal Outcome Test (SNOT-22) in people with cystic fibrosis. Journal of Cystic Fibrosis, 21, S319–S320. https://doi.org/10.1016/s1569-1993(22)01264-4

Gibilaro, J. M., Keating, C., Benvenuto, L., Kramer, A., Privorotskiy, A., Zheng, Y., Leu, C.-S., & DiMango, E. (2022). Survival in cystic fibrosis after acute respiratory failure supported by extracorporeal membrane oxygenation and/or invasive mechanical ventilation. Journal of Cystic Fibrosis, 21(4), 669–674. https://doi.org/10.1016/j.jcf.2021.08.016

Simonson, J. L., Esposito, C., Frantzen, T., Henthorne, K., Espinal, A., Romano, S., Ramdeo, R., Trentacoste, J., Tsang, D., LaVecchia, G., Abdullah, R., Berdella, M., Bonitz, L., Condos, R., Constantinescu, A., DeCelie-Germana, J. K., DiMango, E., Draine, M., Gimeli, T., … Wang, J. (2022). The clinical impact of the Covid-19 pandemic first wave on patients with cystic fibrosis in New York. Journal of Cystic Fibrosis, 21(3), e176–e183. https://doi.org/10.1016/j.jcf.2022.02.012

Saiman, L., Zhou, J. J., Shah, K. S., Jiang, X., Stoudemire, W., Kosorok, M. R., & Muhlebach, M. S. (2022). Barriers implementing infection prevention and control experienced by healthcare workers, people with CF and parents. Journal of Cystic Fibrosis, 21(2), 309–315. https://doi.org/10.1016/j.jcf.2021.07.009

Muhlebach, M. S., Jiang, X., Kosorok, M. R., Klein, E. Y., & Saiman, L. (2022). Longitudinal changes and regional variation of incident infection rates at cystic fibrosis centers, United States 2010-2016. Journal of Cystic Fibrosis, 21(1), 34–39. https://doi.org/10.1016/j.jcf.2021.08.009

Raissi, G., Patel, N., Casey, R., Corcoran, B., & Sadeghi, H. (2021). 152: Weekly patient-family-staff-volunteer during COVID-19. Journal of Cystic Fibrosis, 20, S76. https://doi.org/10.1016/s1569-1993(21)01577-0

Lusman, S. S., Borowitz, D., Marshall, B. C., Narkewicz, M. R., Gonska, T., Grand, R. J., Simon, R. H., Mascarenhas, M. R., Schwarzenberg, S. J., & Freedman, S. D. (2021). DIGEST: Developing innovative gastroenterology specialty training. Journal of Cystic Fibrosis, 20(4), 586–590. https://doi.org/10.1016/j.jcf.2020.07.012