A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine Project

Butler, C. R., Appelbaum, P. S., Ascani, H., Aulisio, M., Campbell, C. E., de Boer, I. H., Dighe, A. L., Hall, D. E., Himmelfarb, J., Knight, R., Mehl, K., Murugan, R., Rosas, S. E., Sedor, J. R., O’Toole, J. F., Tuttle, K. R., Waikar, S. S., Freeman, M., Alexandrov, T., … Zhang, G. (2022). A Participant-Centered Approach to Understanding Risks and Benefits of Participation in Research Informed by the Kidney Precision Medicine Project. American Journal of Kidney Diseases, 80(1), 132–138. https://doi.org/10.1053/j.ajkd.2021.10.006
Authors:
Catherine R. Butler
Paul S. Appelbaum
Heather Ascani
Mark Aulisio
Catherine E. Campbell
Ian H. de Boer
Ashveena L. Dighe
Daniel E. Hall
Jonathan Himmelfarb
Richard Knight
Karla Mehl
Raghavan Murugan
Sylvia E. Rosas
John R. Sedor
John F. O'Toole
Katherine R. Tuttle
Sushrut S. Waikar
Michael Freeman
Theodore Alexandrov
Charles E. Alpers
Christopher R. Anderton
Joseph Ardayfio
Tanima Arora
Tarek M. El-Achkar
Evren U. Azeloglu
Olivia Balderes
Ulysses G.J. Balis
Shweta Bansal
Jonathan M. Barasch
Daria Barwinska
Jack Bebiak
Victoria M. Blanc
Kristina N. Blank
Andrew S. Bomback
Keith D. Brown
William S. Bush
Taneisha Campbell
Pietro A. Canetta
Jonas Carson
Leslie Cooperman
Dana C. Crawford
Vivette D. D'Agati
Pierre C. Dagher
Stephen Daniel
Frederick Dowd
Kenneth W. Dunn
Michael T. Eadon
Sean Eddy
Michele M. Elder
Michael J. Ferkowicz
Joe P. Gaut
Yury Goltsev
Agustin Gonzalez-Vicente
Nir Hacohen
Jens Hansen
Lynda Hayashi
Oliver He
Cijang He
S. Susan Hedayati
Leal Herlitz
Jeffrey B. Hodgin
Andrew N. Hoofnagle
Paul J. Hoover
Ravi Iyengar
Sanjay Jain
Nichole Jefferson
Stacey Jolly
John A. Kellum
Katherine J. Kelly
Asra Kermani
Krzysztof Kiryluk
Robert Koewler
Matthias Kretzler
Blue B. Lake
Zoltan G. Laszik
Stewart H. Lecker
Simon C. Lee
Chrysta Lienczewski
Christopher Y. Lu
Laura H. Mariani
Robyn L. McClelland
Gearoid M. McMahon
Steven Menez
Rajasree Menon
Tyler Miller
Orson W. Moe
Dennis Moledina
Sean D. Mooney
Jane Nguyen
Garry Nolan
George Oliver
Edgar Otto
Paul M. Palevsky
Ellen Palmer
Annapurna Pamreddy
Chirag R. Parikh
Samir Parikh
Christopher Park
Harold Park
Ljiljana Pasa-Tolic
Roy Pinkeney
Emilio Poggio
Parmjeet Randhawa
Helmut Rennke
Glenda V. Roberts
Avi Rosenberg
Matthew Rosengart
Brad Rovin
Neil Roy
Kamalanathan Sambandam
Minnie Sarwal
John Saul
Jennifer Schaub
Rachel Sealfon
Ning Shang
Stuart Shankland
Kumar Sharma
Anna Shpigel
Tara Sigdel
Becky Steck
Isaac Stillman
Edith Christine Stutzke
Timothy A. Sutton
Jose Torrealba
Robert D. Toto
Olga Troyanskaya
Mitchell Tublin
Ugochukwu Ugwuowo
Miguel Vazquez
Dusan Velickovic
Manjeri Venkatachalam
Anitha Vijayan
Celia P. Corona-Villalobos
Nancy Wang
Astrid Weins
Adam Wilcox
Kayleen Williams
Mark Williams
Francis P. Wilson
Seth Winfree
Yuguang Xiong
Kun Zhang
Guanshi Zhang
Affiliated Authors:
Paul S. Appelbaum
Karla Mehl
Columbia Affiliation:
Author Keywords:
altruism
autonomy
community engagement
human subjects
informed consent
institutional review boards
kidney biopsy
non-maleficence
precision medicine
research ethics
research participation
research risks and benefits
safety monitoring
the kidney precision medicine project
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Publication Type:
Article
Unique ID:
10.1053/j.ajkd.2021.10.006
PMID:
34871700
DOI:
10.1053/j.ajkd.2021.10.006
Journal:
American Journal of Kidney Diseases
Publication Date:
Data Source:
Scopus
Source Link:
View Scopus Record
View Web of Science Record

Record Created: