A qualitative exploration of patient perspectives on psychosocial burdens and positive factors in adults with osteogenesis imperfecta

Rork, W. C., Hertz, A. G., Wiese, A. D., Kostick, K. M., Nguyen, D., Schneider, S. C., Shepherd, W. S., Cho, H., Murali, C. N., Lee, B., Sutton, V. R., & Storch, E. A. (2023). A qualitative exploration of patient perspectives on psychosocial burdens and positive factors in adults with osteogenesis imperfecta. American Journal of Medical Genetics Part A, 191(9), 2267–2275. Portico. https://doi.org/10.1002/ajmg.a.63323
Authors:
W Conor Rork
Alyssa G Hertz
Andrew D Wiese
Kristin M Kostick
Dianne Nguyen
Sophie C Schneider
Whitney S Shepherd
Hannah Cho
Chaya N Murali
Brendan Lee
V Reid Sutton
Eric A Storch
Affiliated Authors:
W Conor Rork
Columbia Affiliation:
Subjects:
Osteogenesis Imperfecta (MeSH)
Fractures, Bone (MeSH)
Author Keywords:
anxiety
brittle bone disease
osteogenesis imperfecta
pain
patient perspectives
treatment
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Publication Type:
Article
Unique ID:
10.1002/ajmg.a.63323
PMID:
37317786
DOI:
10.1002/ajmg.a.63323
Journal:
American Journal of Medical Genetics, Part A
Publication Date:
Data Source:
PubMed
Source Link:
View PubMed Record
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